2011 Grant Awards

The posters and papers listed below each grant arise from work facilitated through the grant funding.

The development, implementation and evaluation of an interdisciplinary patient education program for ankylosing spondylitis and related axial spondyloarthritis

Principal Investigators: Passalent, L; Kang, R (PDF)
Co-investigators: Inman, R; Blair, J; Doucet, M; Lui, P; MacGarvie, D; Davis, A

Project Summary

  • Based on the needs assessment, it was determined to develop an e-learning module for this patient population followed by self-management focused face-to-face sessions. Websites, on-line audio/ video and E-learning were cited as the most useful ways to receive information in all sections.
  • The Disease, Diagnosis and Prognosis and Management sections were found to be the most important informational needs.
  • Qualitative analysis indicated three major themes concerning patients: medication/pain, fatigue/activity/work and long term prognosis.

Poster Presentations

Presented at the 2013 Institute for Healthcare Advancement’s Annual Health Literacy Conference and 2014 Canadian Rheumatology Association meeting.

Presented at the 2016 American College of Rheumatology meeting and 2017 Canadian Rheumatology Association meeting.

Presented at the 2019 Canadian Rheumatology Association meeting.

Published Literature

  • Proceedings of EULAR Annual Meeting, June 12-15, 2013, Madrid, Spain. R. Kang, R. Morton, C. Hawke, R. Inman, L. Passalent, J. Blair, A. Lake, M.Doucet, D. MacGarvie, Wong, K.  Utilization of an informational needs assessment to develop an education program for patients with Ankylosing Spondylitis (AS) and related axial spondyloarthritis (SpA)