2014 Grant Awards
The posters and papers listed below each grant arise from work facilitated through the grant funding.
Moving on: Perspectives of young people with arthritis, their caregivers, and health care providers on transition
Principal Investigator: Luca, N.
Co-investigators: Stinson, J; Mosher, D; Johnson, N; Elliott, A; Spiegel, L; Toupin-April, K; Ahola-Kohut, S; Johns, C; Rozenblyum, E; Soon, G; Uifalusi, G.
The themes that emerged from the focus groups indicate that across all groups, it was felt that adolescents are generally not well prepared for transition to adult rheumatology care. This has implications for the rheumatology care of these patients and highlights the need for standardized process/resources for transition preparation. Patients and caregivers placed a lot of importance on easy access to accurate disease- and medication- related information from their health care provider in order to best inform treatment decision making. Stakeholders were in favor of using a transition tool-kit, preferably one that is available online or as a mobile application. Specific areas that users would like to have addressed in the tool-kit include the management of arthritis in college/university, tools for symptom self-management, and tools for medication and appointment reminders.
- Pediatric Rheumatology Symposium, Houston, TX, May 20, 2017, Perspectives of young people with Juvenile Idiopathic Arthritis, their caregivers, and health care providers on transition to adult care: Informing development of a transition toolkit, Luca N, Rozenblyum E, Elliott A, Spiegel LR, Johnson N, Ahola Kohut S, Brandelli Y, Johns C, Luca S, Mosher DP, Soon G, Toupin-April K, Uifalusi G, Stinson JN
Presented at the 2017 Pediatric Rheumatology Symposium
- Perspectives of young people with Juvenile Idiopathic Arthritis, their caregivers, and health care providers on transition to adult care: Informing development of a transition toolkit
Presented at the 2017 American College of Rheumatology meeting.
- Perspectives of Young People with Juvenile Idiopathic Arthritis, Their Caregivers, and Health Care Providers on Transition to Adult Care: Informing Development of a Transition Toolkit